Michelle Surdoval’s husband took medication in August to end his life under Maine’s Death with Dignity law. He had been diagnosed with cancer. Two weeks of treatment made him very ill, so he decided he did not want to suffer or add to his family’s pain, Surdoval said.
While she fully supported his decision, Surdoval said she still felt a web of emotions: anguish at losing him, gratitude that they could prepare, relief that he could pass peacefully.
A so-called death cafe in York helped them explore and understand their emotions ahead of time.
Death cafes are not support groups but rather offer guided discussions where people can ask questions about the end of life, share their concerns and make plans for the future. The meetings, which are free to attend, are led by a death doula who provides emotional support and practical help to those nearing the end of their life.
As the executive director of the York Community Service Association, Surdoval had helped establish the death cafe in York to provide a way for people to have conversations about death. While she first started attending the cafes as part of her job, Surdoval began finding the conversations personally helpful as her husband got older.
Surdoval, who previously worked in public health for 30 years and studied to be a grief counselor, said death can be a difficult topic for people to broach.
“People are afraid to talk about death and dying under any circumstances, and this is as probably as bold a way to discuss the subject as any,” she said.
There have been many of these death cafes across the state, including Portland, Scarborough, Kennebunkport, Auburn and Bridgton. While the discussions don’t happen on a set schedule, information about upcoming cafes can be found online.
During a recent death cafe at the York Public Library, death doula Leona Oceania wore a black skirt decorated with skulls and brought individually wrapped mini cakes in the shape of skulls. About 20 attendees sat on chairs in a circle in the gathering space in the library. Some were first-timers; others had attended multiple death cafes.
They all had different reasons for being there. One woman said she was grappling with the likelihood that she would die alone. A man said he was facing a potentially life-threatening situation. Another woman said she is a caretaker for her mother and is starting up a death cafe in Guilford.
“No one wants to die,” Oceania told the group. “There’s no getting around the fact that it’s going to be sad and overwhelming and difficult, but we’re all going to die, and it’s possible to experience a good death. The key to that is preparation and communication.”
After Oceania opened the floor for discussion, a woman said her doctor looked like a deer in the headlights when she asked about death with dignity.
Maine passed a Death with Dignity law in 2019, which permits residents of Maine, who are 18 and older with fewer than six months to live, to voluntarily take a combination of medications to end their life. Oceania told the group that the person must demonstrate the capacity to make the decision and ingest the medication on their own. Two doctors must agree the person meets the requirements of the law.
They must make two verbal requests, with a 15-day period between the requests, and submit a written request that is witnessed by two people, one of whom cannot be related and does not stand to gain from the death. As of September, doctors now have the option to reduce the waiting period at their own discretion.
Last year, 66 patients in Maine started the death with dignity process, according to an annual report from the Maine Department of Health and Human Services. Five of the patients were still alive at the time of the report.
Surdoval told the death cafe attendees that her husband’s experience with medical aid in dying was a positive experience for her family. Her husband, Wally Schauer, knew for a long time that he would choose death with dignity if he ever got too sick.
Schauer was 22 years older than Surdoval, so the reality that he would likely die first was always in the back of her mind, Surdoval told The Maine Monitor. They were married 43 years. They shared three children from each of their previous marriages, and five grandchildren.
Surdoval described her husband as a brilliant engineer, loving husband, and a man filled with warmth and charm who was charismatic in a quiet way.
Schauer was 95 when he died. He had seen his father suffer through cancer treatment and how it strained their family. When Schauer got cancer himself, he didn’t want the same for his family, so he decided he was done, Surdoval said.
They started the death with dignity process and set the date for a Friday in August. Schauer’s children and grandchildren gathered, including some who traveled from England. They spent the morning all together in Schauer and Surdoval’s home in Cape Elizabeth, until five minutes before the set time. Schauer clapped his hands and said, “All right everyone, time to go.”
They said their goodbyes, leaving Schauer and Surdoval with Oceania, their death doula. After taking the medication, it can sometimes take hours for the person to die, Surdoval said. She was prepared to sit with her husband for a long time, but he died after about 10 minutes. The experience felt safe and loving and not brutal, she said.
Their conversations at death cafes helped normalize the idea of death and helped Surdoval avoid possible triggers. One thing she learned is that the zipper of the body bag can create a post-traumatic stress response later to other zippers, such as zipping up a coat. Surdoval was relieved when the people who picked up Schauer’s body used a quilt instead.
Surdoval said her grief isn’t linear. While she’s grateful her husband died on his terms, it does not lessen the loss she feels.
“Please don’t misunderstand this calmness from which I can speak. I am heartbroken, and there’s no reason to live, and life is stupid, and I can’t do this without him. I have all those thoughts and feelings going on,” she said.
But on the days when she feels better, Surdoval said she views the experience as a gift and an obligation to share with others, so they can prepare with their families.
“When I’m in this place right now, feeling really centered and clear, it’s an honor and a privilege to even tell this story,” she said.
